News & Events
News Posts
January 2012 Newsletter
Happy New Year everyone - an exciting year ahead! The January newsletter has now been mailed out to all members - online copy available . Take the time to view our Auckland Xmas party video - wonderful day enjoyed by all attending .... Read More »
Merry Christmas
Our support staff are away until the 9th January. Meanwhile Staff would like to Wish all of our members and supporters around New Zealand a safe and Merry Christmas and Happy New Year. Follow the link below to hear from some of our Auckland members http://youtu.be/BIdTse9zXpk ... Read More »
Save Power,Save money and Help Raise Funds for KIDS Foundation
Its not very often we can achieve so much with one simple purchase! Introducing this new power save device which is simply to use, and needed by every household in New Zealand ! The Bye Bye Standbye device plugs into the wall socket used for your TV or entertaimnent system and ensures standbye power is eliminated - resulting in significant savings of power and expense. Easy to use , these... Read More »
Razzamatazz 2011 - THANK YOU TO OUR SPONSORS
This years Razzamatazz shows are here at last ! Razzamatazz tours 13 New Zealand cities in 201l for the Kids Foundation New Zealand annual special Charity Event. Back by popular demand, this year's Razzamatazz tour is headlined by the fantastic visual comedy and high-tech silliness of Marty Putz and Co and the amazing jugglery of Jeremy Ansley. Canadian born, Marty Putz, with his youthful... Read More »
Patient Events
Check out the many Patient events coming up in the next few months,detailed in the June newsletter. Support staff will mail out tickets and invitations to members for local events as they become available - please feel free to contact staff if you have any questions; If do you come along to the RazzmaTazz shows be sure to say hello to staff and volunteers on our stand . We look forward to... Read More »
A sad farewell to sweet Aria
The Board and Staff wish to offer their heartfelt condolences to Anita, Hamish and Asher on the passing of darling Aria. For the last five years we have had the privilege of knowing Aria, following her amazing journey and witnessing her braveness and determination. She is a sweet, precious girl who has touched the hearts of people across the world and will never be forgotten. Her parents are... Read More »
World Blood Donor Day 14th June
IDFNZ thanks all NZ blood donors for their precious 'gift of life' - Our patient members are amongst the thousands of Kiwis benefiting from this generousity every week. We challenge families , friends and supporters to join their ranks and help 'Save the Day' by becoming plasma donors helping to achieve the target 30% increase in plasma donations needed to meet a growing demand - read more... Read More »
WINZ Sickness Benefit Changes - Keeping Up to Date
Work and Income (WINZ) WINZ offer a range of assistance to support you and your family when you need it. To see if you are eligible to receive support through WINZ contact them on 0800 559 009 or visit their website www.workandincome.govt.nz Sickness Benefit - Changes WINZ is changing the way they work with disabled and sick people on a Sickness Benefit. The focus is on what people can do,... Read More »
PID Awareness Week 22- 29th April - Thank you to all of our valued supporters Raising Awareness of PID
This period is a time to reflect on the impact of these rare, often hard to diagnose disorders. IDFNZ is dedicated to supporting patients affected by PID disorders and to promoting awareness and recognition of early warning signs of PID and the need for early diagnosis and treatment. IDFNZ would like to thank patient members, volunteers and staff of the following organisations for their... Read More »
April Newsletter
The latest In Touch Newsletter is available online now - being mailed out to members this week. Enclosed with it is a patient survey we are requesting patient members to complete and return to us. We are eager to hear what you think about our services and welcome your feedback.... Read More »
A Search for the causes of Biliary Atresia
Biliary Atresia is the medical term for a condition which features the lack of proper development of some of the bile ducts and gall bladder. The definitive cause is uncertain, though as many of our transplant families are aware the outcome is often chronic liver failure requiring liver transplantation. The exciting news is that a search for the causes of Biliary Artesia is now well underway... Read More »
World Day of Immunology : 29th April 2011
Since 2005, 29th April has marked World Day of Immunology in many countries around the world. The whole week leading up to this day, is this year for the first time being designated Primary immunodeficiency (PI) Awareness week. This period is a time to reflect on the impact of these rare, often hard to diagnose disorders. IDFNZ is committed to raise awareness of the importance of Primary Immune... Read More »
Immunology Awareness 2011 ; Resources for Medical Practitioners
World PI Week is celebrated on 22-29 April 2011. World Primary Immunodeficiency Week's mission is to raise awareness of the importance of primary immunodeficiency (PI) diseases globally and stimulate efforts to improve the recognition, diagnosis, treatment and the quality of life for people with PI world-wide. IDFNZ is committed to promoting the 7 warning signs of PID to medical practitioners... Read More »
Tauranga Members climb the wall
Check out the photos of local Tauranga members enjoying an evening of rock climbing and glow in the dark minigolf! Many thanks to Ian from The Rock House - generously offering this venue for free.... Read More »
Support IDFNZ KIDS Foundation with 'JEANS FOR GENES'
Genes For Genes Day - Monday 28th February Turning back to School Blues into Fun as you support IDFNZ KIDS Foundation Dear Members and supporters Rare Disease Day is a time when the international community of affected patients and families work together to build support for their efforts. We challenge you to Organise or join a New Zealand Rare Disease Day event, and pay just a little for... Read More »
New Vice Chair Appointed
Vicki Tattley has been appointed to the position of Vice Chair on the IDFNZ Board. Vicki is married to Grant and mother to Aidan, Joshua and Mischa. Over the last 10 years Vicki has managed to find time in her busy life to serve continuously on the IDFNZ board, and was also a Founding director of IDFA, assisting in the setting up and governing of this new sister organisation from 2004-2008 .... Read More »
Announcing New Board Members
Thank you to all members who raised their hand to take a turn on the IDFNZ Board - we were thrilled to see so many people willing to serve the organisation. We are pleased to announce the successful candidates are : Nick Metson , of Wellington and Adriaan Bosch , of Whangarei. The Board have recruited 3 additional members to assist with some exciting new projects commencing in 2011... Read More »
2010 Youth Programme
Linked to the 2010 Family conference - a 3 day youth programme was held for PID and Transplant patients and siblings aged 5-16yrs. The group enjoyed activities such as rock climbing, abseiling, team games ,and orienteering - as part of a our KIDS Foundation Games. Gold, silver and bronze medals were awarded to the winning teams at the closing ceremony. We were privileged to hear a talk from Ken... Read More »
Family Conference July 2010
Conference was a very exciting event with over 180 people attending at various times over the weekend of 16th - 18th July. The quality of the PID and Transplant talks were outstanding , providing much needed advice and information for patient members and caregivers. IDFNZ would like to thank the wonderful medical professionals supporting the event and giving freely of their precious time, energy... Read More »
Auckland Xmas Party
The legendary KIDS Foundation children's Auckland Christmas party took place on Saturday 5th December. We were blessed with mainly fine weather after the previous days storms. The usual sausage sizzle and entertainment by BJ the clown and our face painters / tattoo artists - was followed by a visit from Santa himself . Everyone had a fun time , lots of Christmas cheer and good family fun .... Read More »
Circus Quirkus 2010 Shows
Circus Quirkus Napier and Gisborne Shows to be hosted by KIDS Foundation Circus Quirkus has proved to be very popular with our Primary Immune Deficient, liver and bowel transplant families.We are pleased to announce that we will be hosting these shows for Napier and Gisborne, medically fragile and special needs familiesagain in 2010. 'Circus Quirkus' combines a truly unique non-animal... Read More »
Family Conference 2010
FIRST NOTICE Our 2010 Family conference will be in Auckland July 16th - 18th . Watch out for Early bird registrations from December 1st 2009 - to ensure your family are able to attend this super event. The conference will be celebrating 21 years of patient support!!... Read More »
CALENDAR OF EVENTS
Upcoming IDFNZ/KIDS FOUNDATION Events for Patients: Sept 30th - Patient meeting Auckland, Ten pin bowling , Oct 14th - Coffee group meeting Auckland Starship Patients , Nov 2 nd - Christchurch hospital clinic / Patient meeting , Nov 21st Wellington Patient Xmas event / meeting , Dec 5th - Auckland Patient Xmas event / meeting , Dec 6th Dunedin Patient Xmas event / meeting , OTHER... Read More »
KIDS Foundation members at Transplant Games
The KIDS Foundation was proud to see four of our liver transplant patients participating in the transplant games held in Queensland in August this year.All four youngsters came back with medals! Read their individual stories under our members stories section. The photo shows the group as they set off from Auckland; Left to right: Katie Hodge, Jayten Tairua, Julia Woolf, Mathew Mokoroa.... Read More »
South Island Respite Home
The First South Island Respite home made it first public appearance at the Auckland Home Show last week. Thousands of people attending the show were able to see it first hand and learn all about the Foundation and our efforts to provide respite breaks for families. The home will be travelling down to Christchurch for the Canterbury Home Show October 16th - 18th , before making its way to... Read More »
