Stories
Our Member Stories
SCID - a mothers view by Lisa Tamati as Sheridan turns 21
Sheridan was born June 1992. He was a healthy 7lbs 6oz, there were no complications during labour or during my pregnancy. Everything was fine until he was 6 weeks old. I remember the first time I took him to the doctor he was so sick with a chest infection and he was given antibiotics and paracetamol, we visited the doctors two or three times over the week, once at the GP and twice to... Read More »
Michele-Kay-Sharman - living with CVID
Hi……. My name is Michele Kay-Sharman and I have a long and rich history with Common Variable Immune Deficiency…. and a plethora of diagnoses which have been a huge influence on shaping my life, my personhood and will continue to influence and shape my land of tomorrows. Chronic ill health brings with it amazing opportunities to understand and come to know life values.... Read More »
Vicki Tattley
I have been part of IDFNZ since we were informed that our middle child, Aidan had an immune problem. This was all new to us and we were most grateful to discover IDFNZ who then supported us through the critical period of adjustment parents have to make when finding out that their child has a "medical condition". When Aidan was a little older I joined the board of IDFNZ to 'give back' something to... Read More »
Judith Dickson
When my youngest daughter arrived prematurely and very ill and spent the next few years in and out of hospitals, I, along with several GPs, struggled to understand just exactly what was wrong with her. When she was almost eight years old a chance referral to a heart specialist by a Locum and a subsequent referral to a paediatric specialist resulted in her being diagnosed as having an immune... Read More »
William Wright - living with CVID
My name is William and I live in Wellington, New Zealand with my wife and two sons. I was diagnosed with CVID in November 1997 at age 38 after suffering from chronic sinusitis problems for over 12 years. I was also diagnosed as having the early stages of bronchiectasis in my left lung. I first started getting sinus problems about 1985 when I was in my mid-20's. These sinus infections at first... Read More »
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