A Search for the causes of Biliary Atresia
Biliary Atresia is the medical term for a condition which features the lack of proper development of some of the bile ducts and gall bladder. The definitive cause is uncertain, though as many of our transplant families are aware the outcome is often chronic liver failure requiring liver transplantation.
The exciting news is that a search for the causes of Biliary Artesia is now well underway with a NZ based research team recently formed in collaboration between Otago University, Doctors and nursing representatives from Starship Paediatric Gastroenterology dept. and Tauranga hospital Mai nga Kuri a Wharei ki Tihirau.
The study is headed by Professor Stephen Robertson, Professor of genetics , Otago University.Consent forms and Information on this research has been sent out by Professor Robertson on behalf of the Research team to Patients / families affected by this condition, as an invitation to participate .
Patients interested in participating in the survey should in the first instance contact Dr Helen Evans .
Please contact Dr Helen Evans at helen.evans@adhb.govt.nz or on 09 3074949 Ext 5471
The Biliary Atresia Research team includes:
Helen Evans , Paediatric Gastroenterologist, Starship Childrens Hospital, Auckland
Sophia Cameron-Christie, Scientist, Otago University Dunedin
Cate Fraser -Irwin, Clinical nurse specialist, Starship Childrens Hospital, Auckland
Patricia Cook, Te Pou Ahoahoa ( Clinical coordinator), Mai nga Kuri a Wharei ki Tihirua, Tauranga Hospital.
IDFNZ would like to encourage member families to participate and help our scientists to discover valuable information on the underlying causes of this rare medical condition.
File Downloads
Letter Professor Robertson R.pdfBA Research Information Sheet.pdf