Stories
Our Kids Stories
KIDS Foundation members at Queensland Transplant Games
The KIDS Foundation was proud to see four of our liver transplant patients participating in the transplant games held in Queensland in August this year.All four youngsters came back with medals! Read their individual stories under our Kids members stories section. The photo shows the group as they set off from Auckland; Left to right: Katie Hodge, Jayten Tairua, Julia Woolf, Mathew Mokoroa.... Read More »
Shania's Trip to Queenstown
Shania is one of our KIDS Foundation liver transplant members, writing here to report on a special holiday she enjoyed in Queenstown. On Friday, 10th of June, mum and I went to Queenstown. We were part of a group that Cure Kids took on an all expenses paid weekend. There were a lot of people nominated from all over New Zealand but only 10 other families were picked to go. I was nominated by... Read More »
Mathew Mokoroa
My name is Matthew Mokoroa. I live with my Mum, Dad and my 4 brothers aged 11, 10, 7, 6 and my little sister aged 2. I am the oldest child and I am 12 years of age. I had a liver transplant when I was 9 years old. I have also had hepatitis and meningitis's. I started running when I was in Rarotonga at preschool. I usually always came 2nd place in my races at that time. I did manage to come 1st... Read More »
Ekta Kapadia
I have two beautiful children, Darpan (Son) & Ekta (Daughter) .Ekta is our second child born on 14th Feb.2005. On 3rd day after her birth, while still in the hospital her feeding deteriorated, by mid morning she was crying at real high pitch. Later that day and the next day she slept, would not cry or wake up to be fed. I had a feeling that some thing was not right but midwives were not... Read More »
Kiera Saunders
Born 23rd May 2005 - 6 days overdue - our first born arrived, a little girl after a normal non-eventual labour. We knew that we were to stay in the high dependency unit, so Keira could undergo some tests after abnormalities were noted on the 20 week anatomy scan - stomach on the opposite side to normal, possible bowel malrotation & polysplenia. In her first 7 days of life, she had an... Read More »
Liam
Hi Everyone, My name is Sharon Morgan, we live in Auckland, New Zealand. In July 2005 my son Liam (age 3 and a half at the time) got a mystery viral infection. Within weeks the infection attacked and killed Liam's liver (Acute Liver Failure). Although Liam was placed to the top of the List for a deceased donor liver in New Zealand and Australia no suitable donors had been found. After 12 days... Read More »
Lara's Story
Our beautiful second child Lara was born on the 17th September 2006. She had jaundice from early on but it wasn't until her 6 week check with our Plunket nurse that any concern was raised (because she also had pale stools as well as the jaundice.) Lara had blood tests and we were immediately told to go to the hospital for further tests as her conjugated bilirubin levels were high. I mistakenly... Read More »
Catherine
Catherine Hi, my name is Paula and I am the mother of a beautiful little girl called Catherine who is five years old. Catherine was bone on the fifth of August 1995 after a 42 week pregnancy, she weighed five pound nine ounces and the delivery was not a pleasant experience as she was in distress and had a dipping heart rate. Catherine was small but seemed fine until she was three months old... Read More »
Tristan Thornton
Tristan Thornton Tristan was born in Christchurch in August 2007 with a rare genetic Primary Immune Deficiency Disorder ( Di George Syndrome); Tristan effectively had no natural immunity against infections.At 7 weeks of age was still living in isolation at Christchurch Hospital - unable to venture out for fear of infection. Doctors recommended a rare Thymus transplant which could only take... Read More »
Aria MacDonald
Aria was born on Saturday 3rd June, 2006 Read Aria's diary » Two weeks later she was diagnosed with a very rare condition of the bowel known as total intestinal aganglionosis or total Hirschsprung's disease. There is no cure and it means she would never be able to digest food. Total intestinal aganglionosis is where there are no nerves cell throughout the entire bowel to squeeze the... Read More »
Aleksandr Lett
Aleksandr Lett was born on the 30th of December 1996, three weeks early. He had a weak suck and we used premie teats that are a softer rubber. After five weeks of constant screaming he was diagnosed as having gastric reflux, but unfortunately the only treatment able to be prescribed by a GP was ineffective. When Alek was nine weeks old he had his first major infection (having had minor colds... Read More »
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